- DISCUSS CHRONIC ILLNESS IN NOTEWORTHY CHARACTERISTICS HOW TO
- DISCUSS CHRONIC ILLNESS IN NOTEWORTHY CHARACTERISTICS SKIN
For many people, it’s like a fracture that splits a person’s life into a Before and After. Many plans, both near-term and far, may need to be put on hold or abandoned altogether.Ĭhronic illness can create chaos in people’s lives. But chronic illness destroys those expectations ill bodies are no longer dependable or predictable and may even feel like an enemy. We get used to believing that our bodies will function the same from one day to the next and we’ll be able to accomplish what we’ve set out to do. Although we are aware that change happens continuously and no two days are completely alike, when we’re healthy we have expectations that our lives will continue tomorrow pretty much the way they do today. Illness, especially illness that doesn’t go away, creates a profound disruption in a person’s life.
She taught me a grand lesson in patient care: that it is possible to talk with patients, even those who are most distressed, about the actual experience of illness, and that witnessing and helping to order that experience can be of therapeutic value.” Kleinman later wrote: “But whatever effect I had on her, her effect on me was greater. From that point on, rather than screaming and fighting her doctors, she tried to describe to Kleinman what the experience was like for her. Kleinman’s attempts to distract the girl during these ordeals were ineffective, until on one occasion he asked her to tell him how she was able to tolerate the painful procedure day after day.
DISCUSS CHRONIC ILLNESS IN NOTEWORTHY CHARACTERISTICS SKIN
Arthur Kleinman was a medical student he cared for a seven-year-old girl who had been badly burned and had to endure removal of her burned skin daily, which was excruciatingly painful. Parents must be there for a child, but at the same time, they must acknowledge their own stress and anxiety and make time for self-care as much as possible so that they can maintain the energy to deliver support.When Dr.
And if the individual requests privacy or discretion, limit what you reveal to those outside the family or circle of close friends.Ĭhronic illness in children can be especially frightening both for the patient and those around them, as a child may not understand why they must experience pain or suffering. Instead, be clear and direct with statements of caring and offers of practical help. It's helpful to learn what one can about someone's condition independently, but also to understand that many people experience the same condition very differently, and to avoid rushing to judgment or making predictions.
DISCUSS CHRONIC ILLNESS IN NOTEWORTHY CHARACTERISTICS HOW TO
Many people are unsure how to reach out to a chronically ill friend or relative, or are reluctant to pry. It's also important to establish clear boundaries if there are aspects of one's condition that one is uncomfortable discussing.įamily and friends can play a significant role in helping loved ones deal with a chronic illness. Many patients underestimate how much support friends and family members will be willing or able to offer. Still, experts suggest that patients be open with loved ones, including about their need for emotional and hands-on support (rides to appointments, help with shopping, cooking, child care, etc.). Some people with chronic conditions may feel fine most of the time, but have episodes of illness or fatigue, or they may have to take breaks or put limits on plans because of the demands of self-care. But support from family and friends is also vital for maintaining a positive outlook, although many newly-diagnosed individuals may struggle with sharing the news for fear of changing or losing valued relationships, or because of worries about being judged. Support groups for many conditions meet across the country or communicate online. Finding support can be crucial to coping with a diagnosis of chronic illness.
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